Clinical Advisors and Advocates

Ali S. Fatemi, MD*
Lead Clinical Advisor for ALD
Director Moser Center for Leukodystrophies,
Kennedy Krieger Institute; Co-Head ALD Connect
Florian Eichler, MD*
Advisor for ALD
Director of Leukodystrophy Service, MGH; Asst. Prof of Neurology, Harvard Medical School; Co-Head ALD Connect
Jerry Raymond, MD*
Advisor for ALD
Professor of Pediatric Neurology, University of Minnesota
Troy Lund, MD*
Advisor for ALD
Assistant Professor of Pediatric Blood and Marrow Transplantation, University of Minnesota
Keith van Haren, MD*
Advisor for ALD
Assistant Professor of Neurology at the Stanford University Medical Center
Jean Kelley
Patient Advocate for ALD
Parent of child with ALD, led effort to get ALD testing included in newborn screening panel


*  Planned ccALD clinical sites & ccALD Clinical Advisory Board